Blog

May 15th 2018 | Posted by Lauren LaViola

CORE Partner: ThriveRx

Did you know that one of the most common medical needs for grant recipients in the CORE program is parenteral nutrition? Every day people of all ages receive nutrition from “tube feeding”, or intravenous catheters, that supply them with the nutrition usually received through solid foods. Some people may only rely on tube feeding for a few weeks or months, while others might need tube feeding their whole lives.

With children in our program navigating everything from Short Bowel syndrome to premature births, home parenteral and enteral nutrition can be vital to their survival. But tube feeding can also be stressful and scary for parents and patients. Thankfully, organizations like ThriveRx exist to help those new to HPEN find routines and nutrition that works for them. CORE is proud to partner with ThriveRx to support those in our program who are on HPEN!

Photo provided courtesy of ThriveRx.

ThriveRx Supports Families Living With HPEN
CORE (Children of Restaurant Employees, Ltd.) has partnered with ThriveRx, the nutrition division of Diplomat Specialty Infusion Group (DSIG), to highlight nutritional support and educational programs for families living with complex gastrointestinal (GI) disorders.

Some GI disorders prevent children from digesting and absorbing necessary nutrients from their food. Their stomach or bowel might not work, or they might be missing a portion of their digestive tract. To prevent malnutrition and ensure they stay healthy, children often receive parenteral and/or enteral nutrition.

Who Is ThriveRx?
ThriveRx , a division of DSIG, supports home parenteral and enteral nutrition (HPEN) care for families living with short bowel syndrome and other complex GI conditions. Its goal is to ensure that consumers living with HPEN receive quality care that fosters independence and empowers families.

What Is HPEN?
Adults and children whose intestinal function is compromised can receive key nutrients through parenteral nutrition, a liquid mixture that is delivered through an intravenous line into the bloodstream. For those who still have some digestive tract function, enteral nutrition can provide nutritional support. Enteral nutrition is often a liquid prescription formula delivered through a feeding tube
into the stomach or small intestine. For more information on HPEN, click here.

How Does ThriveRx Help?
ThriveRx nurses, dietitians, and pharmacists are certified in nutrition support and intravenous care. Because no two consumers are alike, ThriveRx customizes its support, supplies, and education for each individual.

Nutrition Team
ThriveRx pharmacists, dietitians, and nurses work together to evaluate each consumer’s nutrition with their unique goals in mind. The team monitors consumers’ response to therapy, offering disease-specific nutrition education and management. The experienced ThriveRx nutrition team is recognized by the American Society for Parenteral and Enteral Nutrition as a Clinical Nutrition Team of Distinction.

Nursing Team
ThriveRx’s nursing team is experienced in providing extensive education to ensure children and their families are comfortable with their nutrition therapy and have the best supplies for their needs. ThriveRx’s Nutrition Nurse Navigators are registered nurses who have specialized training in parenteral nutrition and central venous catheter care.  They work closely with families throughout their journey to minimize risk of infection.  Most importantly they advocate for families, help keep all medical team members updated on progress and offer individualized assistance to consumers and their family.

Consumer Advocacy Team
ThriveRx’s consumer advocates are available any time to handle consumers’ HPEN questions and concerns. Because ThriveRx’s advocates are either caregivers or on HPEN themselves, they understand how to prepare for and overcome the nutrition support challenges. Consumer advocates can help with:

– Daily therapy challenges
– Educational tools, tips, and webinars
– Guidance in transitioning care to children
– Medical team integration
– Nonprofit organizationaccess
– Self-advocacy
– Travel assistance

“The advocacy program has been a safety net for our family. When we first started out on nutrition support three years ago, our family was overwhelmed. We felt alone and scared for our son’s health and his future. With the help of the ThriveRx advocacy program and our advocate, we received the quality care and assurances we needed to help our son thrive. Thank you for all you do!”
—Heather

“My experience as a caregiver to a child dependent on parenteral nutrition since birth has been a roller coaster of a ride. ThriveRx advocates have made the journey so much more bearable with their constant support, guidance, and—when appropriate and needed—sense of humor.  Thank you to ThriveRx advocates for doing everything they can to ensure that our family can focus on life beyond
the limits of the medical world in which we live.”
—Michelle

Educational Support
ThriveRx knows it’s important that consumers and their families feel supported. That’s why ThriveRx offers educational programs about therapy needs, nutrition, medication options, and central venous catheter care. ThriveRx also offers consumer webinars presented by clinicians and advocates. These help consumers learn about nutrition support from the comfort of their own homes.
To help with the challenges of everyday life ThriveRx has created Tips to Thrive and Tool Kits. The Tips to Thrive are short educational handouts that help with everyday challenges consumers and their caregivers face.

The Tool Kits are multifaceted packets with information traveling on nutrition support, understanding options and resources for grade-school children dependent on HPEN, and thesteps needed over time, to transition care from the parent to the child.

These can all be found, or ordered free from the ThriveRx website tips and toolkits.
For more information on these programs or to register, visit thriverx.diplomat.is.